Runner Spotlight – Meet Kayleigh and Harry!
Runner Spotlight – Meet Kayleigh and Harry!
Kayleigh Healy, 33 and Harry Sadighi-Azar, 37 from Brighton are running the Altra Brighton Half Marathon to raise money and awareness for a charity called NesT which helps those with Nephrotic Syndrome.
Kayleigh says: “This is a cause very close to our hearts as my 5 year old niece, Amelie, was diagnosed with this debilitating kidney condition recently after spending 10 days in critical care, and our family has been on an emotional rollercoaster ever since. Nephrotic Syndrome affects about 1 in 100,000 people, many of which are young children like Amelie.”
“This serious condition causes the kidneys to leak large amounts of protein into the urine, leading to swelling, increased risk of infections, and a multitude of other health challenges which can develop into a more serious case of needing a kidney transplant or dialysis. The unpredictability of relapses occurring in 60-90% of cases, leaves families like ours with a lot of uncertainty about the future. We want to raise funds for NeST, a charity dedicated to supporting those affected by Nephrotic Syndrome. NeST works tirelessly to increase awareness and fund essential research aimed at finding a cure.”
Fundraising page: JustGiving page